Addressing Barriers

With modern computation enabling more risk-based and personalised screening pathways, the need for data keeps increasing. Yet, cancer screening data in Europe is fragmented, in silos and has different vocabularies and standards. A researcher hoping to improve cancer screening programme is currently slowed down by legislative process, difficulties to access vast amounts of data, and varying coding systems and structures for data.

WP5

Within the #EUCanScreen Joint Action, Work Package 5 – led by the Finnish Cancer Registry – aims to tackle this challenge by harmonising individual-level cancer screening data across Europe.

Our Goal

“Our goal is to make research and monitoring as straightforward as possible, and to strengthen cancer screening as an attractive field for research,” says WP5 co-lead Aapeli Nevala.

Collaboration

Together with IACS  bringing strong technical expertise and CPO Piemonte, which has extensive experience in the use of screening data, as well as many other partners, the collaboration brings together complementary expertise to work towards this ambitious goal.

EHDS

The work is closely aligned with the upcoming European Health Data Space (EHDS) legislation and aims to support screening organisations in the transition to the EHDS era.