JRC and ENCR Publication on Stage Data Availability in European Cancer Registries

First Europe-wide assessment covering six cancers central to EU screening and control policies

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JRC and ENCR study

The European Network of Cancer Registries highlighted a new JRC and ENCR study examining the availability of stage-at-diagnosis information in population-based cancer registries contributing to the European Cancer Information System.

Six Major Cancer Sites

The analysis covers six major cancer sites: breast, cervical, colorectal, gastric, lung and prostate cancer. These cancers were selected because of their importance to Europe’s Beating Cancer Plan and the need to monitor screening, early diagnosis, treatment and outcomes more consistently. Stage at diagnosis is one of the most informative variables in cancer surveillance because it indicates how advanced a tumour is when it is identified and strongly influences treatment choices and survival.

Classification Systems

However, differences in classification systems, data sources, completeness and registry practices can limit meaningful comparisons across countries. The publication provides the first comprehensive Europe-wide overview of how stage information is currently collected and used by participating registries. It documents substantial progress while identifying continuing gaps and heterogeneity.

A Baseline for Future Work

The findings create a baseline for future work on harmonisation, quality assurance and completeness. Better stage data could help policymakers assess whether organised screening and early-detection programmes are reaching their intended populations, identify inequalities in timely diagnosis and interpret survival differences more accurately. The study was coordinated through collaboration among JRC, ENCR registries and CancerWatch partners. Its practical importance lies in showing where European cancer information systems are strong and where investment in standards, training and data infrastructure remains necessary.

Direct link:
https://encr.eu/news/jrc-encr-publication-stage-data-availability-european-cancer-registries

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This project has received funding from the European Union’s EU4HEALTH Programme under the Grant Agreement no 101162959